Case Studies

Check out our case studies on community-based organizations, providers, Title V programs, and family organizations that are using innovative ways to make services easier to use for CSHCN and their families. The purpose of these case studies are to increase awareness of these programs, provide concrete examples of partnerships, activities and lessons learned, and identify programs that can be replicated in other states. If you know of a great program, please fill out a brief survey that provides some basic information about the program or person.

  • The Medical Home Portal is an online database that provides information for both clinicians and families who care for children and youth with special health care needs (CYSHCN). The Portal also serves as a way for families to learn more about the availability of local services and resources for CYSHCN in Utah, Idaho, and New Mexico (and more states in the future).
  • The Statewide Parent Advocacy Network (SPAN) is an independent nonprofit organization that serves as a “one stop” center for families, parents, and professionals in New Jersey seeking information on and access to family support, health/mental health and education services.
  • Goldsboro Pediatrics is a large, rural pediatric practice that primarily focuses on Children and Youth with Special Health Care Needs children and youth with special health care needs (CYSHCN) and at-risk youth in eastern North Carolina.
  • Dr. Tisa Johnson-Hooper is a pediatrician at a large primary care pediatric practice that is part of the Henry Ford Health System in Detroit, Michigan. Her practice offers a family-centered medical home approach to treating children with special health care needs.
  • AIR Travel simulates real-life travel experiences for children and youth with autism.
  • School-Based Health Care Centers in New Mexico use multi-disciplinary health teams to provide comprehensive primary care and behavioral health services for adolescents.
  • Help Me Grow (HMG) is an integrated, specialized unit of United Way 211 that connects parents and service providers to community resources for children ages 0 to 8 in Utah and Salt Lake Counties.
  • The Mobile C.A.R.E. Foundation operates medical mobile units that provide asthma treatment and services across the Chicago area.
  • Pediatric Partners in Raleigh, North Carolina offers CSHCN a family-centered medical home.